The Pakistani Spectator

 Recently I came across a painful tragic article cum news wherein;

A terminally ill British teenager has won the right to die after she was taken to court by a hospital that wanted to force her to have a heart transplant.

Thirteen-year-old Hannah Jones has been in and out of hospital for most of the past 10 years, but now she has refused any more operations to prolong her life.

She has cardio myopathy; in layman’s terms, a disease of the heart muscle.

Hannah’s mother Kirsty Jones says it was caused by the high strength drugs she was given to treat a rare form of cancer. “She first got sick at the age of four with acute myeloid leukemia, and it was the chemotherapy that caused the heart failure, so we had to stop the chemotherapy,” she said.

But while she eventually beat the leukemia, her heart was left severely damaged, and can now only pump 10 per cent of its capacity.

Now she has refused a life-saving heart transplant and, in a show of maturity beyond her years, she told her doctors she would rather go home to die surrounded by her loving family.

 “I’ve been in hospital too much and I’ve associated hospital with some bad memories; so that’s why I didn’t want the transplant.” 

A child protection officer was called in and Hannah was on the brink of being forcibly removed from her home and her family.

The teenager was adamant that she did not want the transplant and she convinced the authorities that the operation was not in her best interests.

Now British officials have agreed to allow her to spend her remaining days at home.

Dr Daniel Sokol is a lecturer in medical ethics at St George’s Hospital in London; he also backs the 13-year-old’s decision.

 “She’s a professional patient, she’s been a patient for most of her life and if she is able to understand, she comprehends and has enough information then it doesn’t matter whether she’s 13 or 88, it should ultimately be her decision in my view.”

Doctor’s warn that without the transplant Hannah could die within months.

Here is the link.

Terminally ill teen wins the right to die

Discussion:

This is such a painful and emotional, tragic tragedy.

 Perhaps it’s a deliberate experimental negligence as crime; by same group of people as clinicians, who utilize skill and expertise in the name of profession; as only available left option of the victim therefore, the patient.

 I don’t know where but should I must put this controversy in to irrationalism or in to the vocabularies concept of crime as offence.

 This is a slap; a massive humiliating gesture by a 13 year old girl, who remained a victim of advancement and expertise in the name of treatment.

 Nothing is truth but what has been floated and declared by the one who is at the verge of death.

This disrespect as discard by her, against the concept of advancement and this prestigious profession, has endorsed as rule that; her life was miserable due to so called treatment and every such step that was taken thereby to treat or to miser her more than her real disease.

 Shame on this technology and unethical inflictions of irrational investigative procedures as experimentation! That has embarrassed this subject of medicine, through the hand of a girl, who still; and yet to be declared as mature thought.

 This disregard as feel by this child is a moment of momentary crown of dishonor for medical professionals, which has pasted burned and blackened shadow to the concept of advancement and unethical subjection as skill therefore; explaining and highlighting this concept that these patient as ultimate sufferers, are a piece of cake for these experts to garnish their skill as experience over the soul of patient as victim.

 Who can justify this act of clinician whom can not maintain their intimacy with a patient who has seen only suffering as birth?

 How come this case been brought to the court by these offenders as clinician or hospital and has been astonishingly dismissed without confiscating and scrutinizing this issue as silent plea from a sufferer; who had virtually endorsed her feel that, she was been under trial of experiments in the name of treatment or in the name of ultimate relief.

 This issue should have been treated by the court in the name of humanity and ailing victim considering her rejection of life and acceptance as death; a moment of thought.

 In my opinion there is clear breach of ethics if she was deliberately drag and cordoned for treatment since it’s a real and clear violation of ethics in terms of consent.

 No buddy can be put to treatment but with consent and approval of their legitimate or the concerned functionaries if at all there are no relations hence, being under the rule as governance; since it’s the prerogative and obligation as right and compulsion as well, of the government; to provide and console her citizen and is ethical too.

 This is not at all a simple case of winning a right to die over a inflicted death but a controversy under ethical law that hold responsible all those who could not maintain their crown as expertise.

 In my opinion this is a real time that government functionaries must hold responsible in order to console patient and her anxiety over the means of treatment and in addition must take immediate action through all available modes as concern; thereby to provide relief to the child through treatment.

 This case and its data must be scrutinized in a real sense of ethics and moralities therefore inquire any breach and extra event as investigations or treatment so to ensure dying mind with console.

 She must not die helplessly; disgracing this field of medicine hence all concerned as informed may be ethicist, government and readers; hence tagging all deaf and dumb.

We must prove our impression more loving and concerned towards her so to ensure her that this field of medicine would go for her, even in a miraculous deal with legitimate efforts thereby; to give her few more breathe as comfort and peace.

 May God bless her with life and peaceful living in near to come days?